It is with great sadness that we reflect on the life of Jonathan Hickman, known affectionately as “Kent,” whose passing on November 30, 2018, at the age of 22, left a profound mark on all who knew him. Born on April 14, 1996, in Shelby, Ohio, Kent’s life was filled with courage, faith, and an unyielding spirit that continues to inspire even after his death. Despite his battle with Sanfilippo Syndrome, a rare and terminal neurodegenerative disease, Kent lived his life in a way that touched the hearts of many, reminding us all of the resilience of the human spirit and the enduring power of love.
Kent’s journey through life was defined by his resilience and grace. From the moment he was diagnosed with Sanfilippo Syndrome, Kent’s family knew they were in for a difficult and challenging road. The disease, which gradually robs children of their physical and mental abilities, could have easily diminished Kent’s joy for life. However, his family was quick to notice that Kent’s spirit was never broken by the disease. Instead of allowing his illness to define him, Kent faced each day with strength and courage. His joy for life and love for those around him remained undiminished by the hardships he faced. Kent was a constant beacon of light for his family and friends, always bringing a smile to their faces, even in the darkest of times.
Kent’s family described him as a teacher, someone who taught them lessons of love, patience, and unwavering faith. His resilience in the face of adversity was a source of inspiration to everyone who knew him. His ability to stay positive and grateful, despite the immense challenges of his condition, was nothing short of remarkable. Kent’s family, including his parents Larry Hickman and Kari (Tim) Tarvin, his siblings Kayla (Lee) Klopfenstein, Krista (Ben) Carver, Kendra (Cody) Bryant, and Garrett Hickman, all reflected on the deep gratitude they felt for the time they shared with Kent. The bond they shared with him, and the lessons he imparted, will forever remain in their hearts.
Beyond his immediate family, Kent was deeply loved by his extended family, including his paternal grandfather, Jim Hickman, maternal grandparents Sharon (David) Bradley and Terry (Theresa) Hale, and his great-grandmother, Viola Shepard. Kent’s passing has left an indelible void in their lives, and they, too, cherish the memories of his infectious smile, his loving nature, and his ability to brighten even the darkest of moments. Kent’s siblings, in particular, feel the weight of his loss. They remember him as a loving brother and a constant presence in their lives, always offering support and encouragement whenever needed. His loss is felt deeply, but they find solace in the love he gave them, and in the way he taught them all to live with grace and strength.
Kent’s legacy lives on in the memories of his family, friends, and the many people he touched during his short but impactful life. His story is a testament to the strength of the human spirit and the power of love and faith to overcome even the most challenging circumstances. The way Kent faced his illness with courage and positivity is a shining example of the resilience of the human spirit. Even though his time on this earth was far too short, Kent’s life was filled with purpose, love, and meaning.
A memorial service was held to celebrate Kent’s life on December 6, 2018, at Core Community Church in Shelby, Ohio. Kent’s brother-in-law, Pastor Ben Carver, officiated the service, which was attended by many family members, friends, and members of the community who had been touched by Kent’s life. The service was a celebration of Kent’s journey, and those who gathered to honor his memory shared stories of his kindness, humor, and the joy he brought to those around him. Following the memorial service, a graveside service was held at Oakland Cemetery on December 7, 2018, where Kent was laid to rest. His family, in accordance with Kent’s wishes, requested that donations be made to Palliative Care at Akron Children’s Hospital, an organization that had provided Kent with compassionate care during his illness.
Kent’s story continues to inspire, and his legacy lives on through the countless lives he touched. His belief in the power of love and kindness, even in the face of the greatest challenges, remains a guiding light for all who knew him. Kent taught those around him to live with purpose, to show compassion, and to never take a single moment for granted. He was a reminder that, even in the face of illness and hardship, it is possible to live a life full of love, joy, and meaning.
As we reflect on Kent’s life and the impact he had on those around him, we are reminded of the importance of community and the bonds that hold us together. Kent’s family is finding strength in one another as they navigate this difficult time. They are holding onto the love and lessons Kent imparted to them, and they are determined to carry on his legacy by continuing to spread kindness, love, and faith in their own lives.
Kent’s story is not just one of a young man who faced a terminal illness. It is a story of resilience, love, and the power of family. It is a reminder that, no matter the challenges we face in life, we can choose to live with grace and strength, just as Kent did. His spirit will continue to inspire those who knew him, and his legacy will live on in the hearts of his family, friends, and the community that loved him.
In the aftermath of Kent’s passing, his family continues to find comfort in the love and support of those around them. They have expressed deep gratitude for the outpouring of sympathy and support they have received from family, friends, and even strangers who were touched by Kent’s life. In honoring Kent’s memory, they are committed to continuing the work that Kent started—spreading love, kindness, and faith to everyone they meet.
Kent may no longer walk among us, but his legacy will never be forgotten. His love, his courage, and his faith will continue to inspire us all, and his memory will live on in the hearts of those who loved him. Rest in peace, Kent. You will always be loved, and you will never be forgotten.
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